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Transforming Care Programme

This resource has been developed by the Council for Disabled Children to help children and young people understand NHS England Transforming Care Programme.

The information sheet aims to break down the programme into understandable segments, and includes links for children and young people to find more information.

Transforming Care Programme - What is it?

Transforming care is about making health and care work better for children and young people with autism and/or learning disabilities.  It is the name used to describe how health, social care and education should work together to improve health and care services in local areas.

The program is helping services that are local to where you live, so if you need help with your health it will be close by.

To do this, Transforming Care is making new hospital services that will be easier for local people to get to, and they are also improving community support so you can get help close by to the people you know.

Who's it for?

Transforming care has been made for people who have a learning disability, autism, or both.

Transforming care especially focuses on people with challenging behaviour: people whose behaviour means that they find it hard to communicate and may hurt themselves or others around them.

Challenging behaviour can include:

  • aggression
  • self-harm
  • destructiveness
  • disruptiveness

How it runs

A big goal for the project is to make sure that more people can live safely and happily with people they know and care about, rather than go to hospital.

Transforming Care wants to make this happen by giving the right support to local health and social care. Each Transforming Care Partnership will be in charge of local plans for health and care. They are in charge of making community services better so that people who need care can still live near their family and friends. They do this by making sure that health, social care and education professionals work together and listen to what children and young people need.

Information about you

A big way Transforming Care works with people is by using Care and Treatment Reviews (CTRs). The reviews are carried out by a group of people, including someone with a learning disability or autism, or a family carer. It will also include a healthcare expert, and a commissioner.

The Review is meant to make sure your health care fits your needs. It will ask things such as 'are you safe’ and 'are you getting good care now’. The end goal of this is to make sure you can get support in your community instead of going to hospital.

The NHS needs to know information about you to know what your needs are. The Assuring Transformation Programme gets information such as how many people are going into hospital. It does not include personal information like your name and your birthday.

If you do not want to have your information used for this, you have the right to say no. You will need to speak with your local commissioner if you do not want to share your information. A family member, friend, or charity can help you with this.

Who runs it?

NHS England - Transforming Care is run by the National Health Service in England (NHSE). When it comes to who is in charge, there is one big group that is made up of the smaller groups running Transforming Care.

TCDB - This big group, called the Transforming Care Delivery Board (TCDB), is made up of people from the NHS, the Government, Local Authorities, and people whose job it is to make sure that proper care is given to people.

TCP - It is locally run by 48 different Transforming Care Partnerships (TCPs) across England. TCPs are made up of Clinical Commissioning Groups (CCGs), special commissioners and local authorities.

SRO - The person in charge of your local Transforming Care Partnership is called the Senior Responsible Officer (SRO). It is their job to make sure the Transforming Care services are working.

Where to find more information

General:
For general information about the project, go to the NHS England website. There are a lot of official documents there, but don’t worry — the website does a good job of breaking it down. Click the link below to visit it.

https://www.england.nhs.uk/learning-disabilities/care/children-young-people/ 

Transforming Care Partnerships (TCPs):
Click the link below if you want to find out more about your local transforming Care Partnership. The website has separated each one in to four different areas: London, Midlands and East, North, and South:

https://www.england.nhs.uk/learning-disabilities/tcp/

Click on the one that applies to you, and search for your local area. Then you can find the Clinical Commissioning Groups and Local Authorities that make up your TCP. There will also be an email address for your local Senior Responsible Office, if you want to contact them.

Care and Treatment Reviews (CTRs):
Here is an easy read document that explains everything about CTRs. This is a very long document, but will explain everything you need to know about them:

https://www.england.nhs.uk/wp-content/uploads/2017/03/easy-read-care-treatment-review-policy.pdf

For a briefer look at CTRs, the NHS website has a shorter summary, although this is not in easy read:

https://www.england.nhs.uk/learning-disabilities/care/ctr/

Assuring Transformation:
This document for Assuring Transformation is not too long, and is in easy read. It will tell you all about the program, including how to talk to your commissioner if you do not want your information involved in it:

https://www.england.nhs.uk/publication/what-is-assuring-transformation/

This resource has been developed by the Council for Disabled Children on behalf of the Transforming Care Programme, part of NHS England.

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