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PANS/PANDAS UK Charity - Support Group

PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strepare devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools.  

One estimate suggests that up to 1 in 200 children suffer from this condition.  

  • Resources for parents including diagnostic criteria and details of local support groups. 
  • Resources for Medical professionals  
  • Resources for teachers and Schools 
  • Teacher training package 
  • Facebook group for parents/caregivers 
  • Facebook group for Young People age 12-17 with the condition. 
  • Facebook group for Adults 
  • Links to further Research 
  • Advocacy and support from the charity 

Children aged 4 to 19 who are displaying symptoms associated with the condition and/or diagnosed with the conditions.  Affected children can be in mainstream, alternative, specialist provision or electively home educated.

Please join our Facebook group @panspandasuk, where you can obtain further support as and when needed.

Who to contact

Contact Name
Vicky Burford
Contact Position
Secretary
Telephone
0708764750
E-mail
secretary@panspandasuk.org
Website
My service's website

Where to go

Notes

All of Cumbria covered.  We provide support via our Facebook group PANS PANDAS UK.

Other Details

Costs

Details
Free at point of access, supported through the PANS/PANDAS UK Charity.

Availability

Referral required
No
Referral Details

Self-referral, Education provider (consent obtained), SEND Specialists and Educational Psychologists.

 

https://www.panspandasuk.org/for-educators

 

Last updated: 16/08/2021
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